tv [untitled] February 25, 2012 10:30pm-11:00pm PST
but my best vision is right here in the center. off to the side, there's nothing here at all. even though the individual is experiencing night blindness, they still have good daytime vision, but when the peripheral field starts to close in, then that leads to the next hit--driving. narrator: driving a car is the hallmark of american adolescence, but for ryan, now in his third year of college studying computer science, that dream was shattered during a routine visit to the eye doctor. translator: well, i rembmber going into the doctor's office. i was having a visual field test where they measure how much vision is left. i went in, and i sat down across from the doctor.
i was very hopeful that i could get a driver's license and learn to drive. well, the doctor told me my vision wasn't good enough. it was close, borderline, but i was legallblblind. i was told absolutely no. i couldn't get my license. i was so hurt because, from my perspective, i could see well enough to drive, at least during the daytime, but after that test and that definite no, i was devastated. it broke my heart. narrator: kadie is a second-year college student studying accounting. like lauren, kadie received a cochlear implant as a child and developed the ability to speak. it was not until she was preparing to drive that she even learned that she has usher syndrome.
you know, first, they told me i had ushers, and the doctor said, "ok. you're turning 16 years old. you can't go for your license," and i was like, "that's not fair." you know, being 16 years old should the day that you're looking forward to, like, getting your license and everything, so i was very upset. i was mad. i had all these emotions running through my body. i just didn't know what to do. narrator: mansur is currently studying applied computer technology. growing up in georgia, his father taught him the fundamentals of driving. translator: i must admit that i drove when i was about 16 years old. i got my license and drove on country roads without a problem...
but when i was driving on this road one time where there was road construction, it was very awkward. i wasn't really sure about the speed limit, so i was going really slowly. i should have been going faster. that's when my dad changed his mind and decided i couldn't drive any more. narrator: mansur took up wrestling in high school but now wrestles in college, where all of his teammates are hearing. with an interpreter present, his coach provides complex instruction, and teammates find alternative ways to work together. i do the move in 2 or 3 parts, so i make sure that he understands what i'm doing, and then he does the same... [whistle blows] and then next time, he does it better th m me.
as the peripheral vision continues to close in, individuals start bumping into things, tripping, and even hurting themselves. this leads to our next hit-- using a cane. when i see people with cane, i think they are blind. that's my first reaction. translator: while i was using the cane, i saw how people would move away from me, and i noticed their exaggerated responses, moving totally out of my way while staring at me. i feel like i'm in a fishbowl. if i use a cane, i'm basically telling myself, "you're blind. you can't see," and i don't feel that way at all yet. translator: deep down inside, i feel silly, embarrassed... because i feel like i've done something wrong or missed something, like i've messed up and everybody noticed. i can see it on their faces, and i don't like that.
i wish they would just ignore me and let me walk right along. i'd like that better. as your vision continues to decline, how you communicate with people becomes an important issue. for myself, i use visual sign language, but in places that are dark or difficult to see, i need to use tactile sign language. tactile signing is when the person puts their hand on you and sign and you feel the sign instead of seeing it. for myself, i don't know if i'm 100% comfortable with that yet because i'm not sure if i'm ready to give up my visual language. narrator: up until now, we have seen young adults struggling with adaptations required by their decreasing vision.
jelica is an adult who has reached a high level of adaptation. born in oaoatia, she immigrated to the united states with her parents when she was 4 years old. jelica was diagnosed with ushers when she was 19. she graduated with a bachelor's degree in biology and later received a master's degree in public health. she moved to seattle and is now the executive director of the deaf-blind service center. she manages an office and conducts business meetings using tactile communication. translator: i run the everyday operation and make sure the staff are doing their jobs. i am responsible for making budget decisions. also, i coordinate with executive directors of other organizations. because we are small and specialized, we can't do everything, so we divide the responsibilities
and avoid duplication of services. narrator: using her cane and public transportation, jelica travels independently to a meeting across town. she uses a vibrotactile crossing signal to make her way across the street. she signals the bus driver about her special needs with color-coded cards. the driver knows to stop and traces the route number on her hand, indicating she is boarding the correct bus. translator: i know people are shocked at seeing a cane,
and they're shocked at seeing tactile communication, and it's true--it is shocking-- but it's so much better than pretense or denial because then you end up looking really stupid. narrator: at her destination, jelica meets her scheduled support service provider, or ssp. the ssp provides visual information and guidance. today she meets with a representative from seattle's aging and disability services division to discuss the annual walkathon fundraiser. the walkathon is an activity that brings hearing, deaf, and blind residents together to learn more about each other. part of jelica's job is to raise money to keep the agency functional. each year, this fundraiser promotes awareness and support for the deaf-blind service center and its programs.
"hey, everybody! you guys ready? "this is the second group. "we're going to take off at 11:00, "but first, i wanted to thank everybody "for all of your wonderful support and spirit for dbsc. thank you. thank you. thank you." yeah! translator: this is the kind of work i do every day-- reaching out to others, encouraging them to believe in themselves, urging them to use their own skills and their own minds, especially their minds, which will help them overcome any barriers they encounter. narrator: jelica shares her life out of the office with her husband vince. they met while attending college. although he was born profoundly deaf, vince does not have usher syndrome. translator: we've been married for 17 years and have grown a lot over that time. vince has a disability, as well.
he depends on me for many things, and i rely on him in different ways. we support each other. there's equality in the relationship. of course, vince and i both get comments about how sweet he is and how lucky i am to have him. my first response is, "no. he's lucky to have me, too." translator: many people don't really recognize the power of love... and don't realize the meaning of true friendship. we've let go of people who are not there for both of us and find friends who benefit us both. translator: technology is changing so rapidly, everything soon will be running on braille. the large-print format we have now is not practical for small portable devices,
which, in turn, means i realize i'll need to transition to braille because everything is so small. handheld gps systems are just one example. gps would be wonderful while i'm traveling, but the printout would be in braille, and i would have to learn how to use braille. with changing technology, smaller devices like that don't have the capacity for large print. they can only show one letter at a time. it would take forever to read one word. i know that won't work, so when you project out 5 to 10 years, the new technologies will challenge me to become fluent in braille, as well. narrator: technology is rapidly changing the way we all live our lives. so, too, medical research is changing the way we view and treat disease. with all this progress, what does the future hold for those who have usher syndrome? this is going to be a very gradual process.
we're going to be able to slow it first because that's the easiest thing to do. ultimately, we'll be able to stop the progression of the rp, and finally, we're going to be able to reverse it and give back some of the vision that people have lost. now, this isn't going to happen tomorrow, and it will come in short, little spurts. there'll be a this, that will maybe help a little bit, then something else that will help a little bit. it's going to be just like cancer research, just little pieces, and little parts of the therapy come at different times, and each one has a small effect, but ultimately, ultimately, we're going to be able to fix this disorder. now you understand the personal challenges that we are faced with living with usher syndrome, but it's important to understand that living with usher syndrome is not a one-time event, but it's a lifelong process.
each change in life can cause challenges that must be dealt with, but more importantly, we've already witnessed that with appropriate support, adaptation, and attitude, people with ushers can and do live meaningful and productive lives. narrator: it would be erroneous to say that people with ushers accept the disease, but they do manage to adapt. in fact, learning to adapt over and over and over is what is required to live with usher syndrome. and to see her now, you know, this young lady in, you know, adolescence, you know, changing and becoming so sure of herself and so bright d d so interested in so many things,
it makes me feel that that's what i am supposed to do, is help kids communicate, and it was successful. you have a long road ahead of you. you have a lot of work to do, but i think that if you do the work, you'll see great results and that your child can do whatever he or she wants to do. i know she's going to have a good future because i know she's strong and brave and kind and will learn whatever she wants to learn. i know she's going to have a good future.
to show just how easy it can be to do just that, we have come up with something called the farmers' market challenge. we find someone who loves to cook, give them $20, and challenge them to create a delicious meal from ingredients found right here in the farmer's market. who did we find for today's challenge? >> today with regard to made a pot greater thanchapino. >> you only have $20 to spend. >> i know peter it is going to be tough, but i think i can do it. it is a san francisco classic. we are celebrating bay area food. we have nice beautiful plum tomatoes here. we have some beautiful fresh fish here. it will come together beautifully.
>> many to cut out all this talk, and let's go shop. yeah. ♪ >> what makes your dish unique? >> i like it spicy and smoky. i will take fresh italian tomatoes and the fresh seafood, and will bring them to other with some nice spoked paprika and some nice smoked jalapeno peppers. i am going to stew them up and get a nice savory, smoky, fishy, tomatoy, spicy broth. >> bring it on. how are you feeling? >> i feel good. i spent the $20 and have a few pennies less. i am going to go home and cook. i will text message u.n. is done. >> excellent and really looking
forward to it. >> today we're going to make the san francisco classic dish invented by italian and portuguese fishermen. it'll be like a nice spaghetti sauce. then we will put in the fish soup. the last thing is the dungeon as crab, let it all blend together. it will be delicious. when i could, i will try to make healthy meals with fresh ingredients, whatever is in season and local. those juicy, fresh tomatoes will take about an hour to cook down into a nice sauce. this is a good time to make our fish stock. we will take a step that seems like trash and boil it up in water and make a delicious and they speed up my parents were great clerics, and we had wonderful food. family dinners are very important. any chance you can sit down together and have a meal together, it is great communal atmosphere. one of the things i like the most is the opportunity to be creative. hello.
anybody with sets their mind to it can cut. always nice to start chopping some vegetables and x and the delicious. all this double in view is this broth with great flavor. but your heart into it. make something that you, family, and friends will really enjoy. >> i am here with a manager at the heart of the city farmer's market in san francisco. thank you for joining us. tell us a little bit about the organization. >> we're 30 years old now. we started with 14 farmers, and it has grown out to over 80. >> what is the mission of the organization? >> this area has no grocery store spiller it is all mom-and- pop stores. we have this because it is needed. we knew it was needed. and the plaza needed somebody. it was empty. beautiful with city hall in the background. >> thank you for speaking with
us. are you on the web? >> yes, hocfarmersmarket.org. >> check them out. thank you. >> welcome. the dish is ready. >> it looks and smells amazing. >> thank you. it was not easy to meet the $20 budget. i checked everybody out and found some great produce. really lovely seafood. i think that you are going to love it. >> do not be shy. cyou know this can run you $35 to $45 for a bowl, so it is great you did this for $20. >> this will feed four to six people. >> not if you invite me over for dinner. i am ready to dig in. >> i hope you'll love it. >> mmm.
>> what do you think? >> i think i am going to need more. perhaps you can have all you want. >> i am produce the that you have crushed this farmer's market challenge by a landslide. the first, we're going to have to tally of your shopping list and see what you actually spend that the farmer's market. >> and go for it. >> incredible. you have shown us how to make super healthy, refresh chapino from the farmers market on the budget, that for the whole family. that is outstanding. >> thank you peter i am glad that you like it. i think anybody can do it. >> if you like the recipe for this dish, you can e-mail us at firstname.lastname@example.org or reach out to us on facebook or twitter and we
>> sanrio famous for the designs for hello kitty. i thought i would try to make it as cute as possible. that way people might want to read the stories. then people might be open to learn about the deities and the culture. ♪ they reached out to make about five or six years ago because of the book published. they appreciated that my work was clearly driven from my research and investigation. after i contributed my artwork, the museum was really beside themselves. they really took to it. the museum reached out to me to
see if i would be interested in my own space inside the museum. i tell them that would be a dream come true. it is the classical, beautiful indian mythology through the lens of modern design and illustration and storytelling. they're all of these great sketch as i did for the maharajah exhibition. i get a lot of feedback on my artwork and books. they complement. they say how original the work is. i am the first person to say that this is so derived from all of this great artwork and storytelling of the past. the research i put into all of my books and work is a product of how we do things that a-- at pixar. sometimes you will see him depicted monkey-like or as
superman. i wanted to honor his monkey coloring. i decided to paint him white with a darker face. it is nice to breathe new life into it in a way that is reverent and honors the past but also lets them breathe and have fun. it is almost a european notion to bring these symbols and icons from southeast asia. they decorate their deities. it was a god they interacted with every day in a human way. the most important thing has been to create work that is appealing to me. i want to see vishnu to pick did in a modern way.
it dawned on me by reinterpreting the deities in a way that is modern and reverent to the history, i am building a bridge for young and old audiences to make friends with the culture and these icons to learn their stories. ♪ gentlemen, the voice of the san francisco giants and his radio personality -- kiss radio personality, ranelle brooks
moon. >> thank you so much. thank you, everybody. thank you so much. happy valentine's day, and good afternoon, san francisco. [applause] i am so honored and thrilled to be part of today's celebration. we're going to have a great time as we salute a living legend today. it was 50 years ago, high atop noob -- nob hill in the venetian hotel that tony bennett sang a song for the first time, a song that would become a worldwide and the mind forever with our city. i'm talking about, of course, "i left my heart in san francisco." and what better way to celebrate valentine's day then with a tribute to the most famous love tribute to the most famous love song ever dedicated to our hom